Jump to content
IGNORED

CTmedicalFW, the next step...


cowpuc

Recommended Posts

After having a functional life of about 5% of that of a normal person over last winter (literally sleeping 18/20 hrs and still being tired), we were thanking God that this wreck of a body of mine responded like it did to Prednizone at an Emergency Room visit back in April. That response led my family doctor to hook me up with an Endocronologist (she is running out of specialist to send me to I think). They also found blood in my urine at the same ER visit which led me to a Urologist.. The results of the Urologist exams revealed that I do have Prostate Cancer, that proved to be low on what is known as a "Gleason" scale and totally unrelated to what ever was sucking the life out of me (literally felt like I had a hole in the bottom of my feet and every time I tried to stand up I could feel the life draining from my body - STRANGE!!!).. We decided to hold off on any advanced Prostate surgeries and continue pursuing what is/was causing my symptoms.

Because I did respond to Pred at the ER, my family Doctor started me on a low dose (5mg) of Pred back in April and that seemed to really help. It took some time to get into see an Endo Dr.. After listening to what was going on and examining my records, the Endo Dr. said it appears that I do have Adrenaline Deficincy as a result of something going wrong with my Pituatary/Adrenaline system.. At that time, test showed that the only Adrenaline present in my system was (and is) a very small amount that the low dosage of Pred is providing.

The unfortunate thing to all of this is that he (the Endo Dr.) can do nothing in further diagnoses or treatments until I am weaned off the Prednisone - a 4 to 6 week process that would lead me right back into that nasty world of living at 5% BUT - and its a HUGE BUT,, this time it would be for a purpose!!

I was SO glad to have had even a small amount of an ability to function this 2015 summer (been feeling at about 60% - ironically the Endo Dr. said that is exactly what he would expect as the Pred is only providing a fraction of what I need and only one type of adrenaline). By the grace of God and because of the Prednizone I was able to walk my youngest daughter down the isle and attend Freebirds MD, Orlin's MD, The Mackinaw Car Show, Muskegon's Bike Time and even hold a couple of my very own "Greet - Meet and Eat Meats". Not our usual 2 month summer of CTFW across our gorgeous country but far better (plenty of action to write about this coming winter) than what I thought my summer was going to be like - THANK GOD!!

When the Dr. announced that he was going to begin the process of cutting off my Pred a couple weeks ago I begged for mercy, explained how bad we wanted to attend the Sturgis Rally before heading back into the abyss.. The Doctor agreed to it as long as I agreed to start the process as soon as returning home from Sturgis..

Tweeks, Tip and I did get to attend the 75th Sturgis Rally - all went really well and we had a LOT of refreshing fun.. A deal is a deal however and I am now into my 4th day of cutting back my Pred as agreed upon. I can feel the change taking place and Tippy announced to me today that she can see the changes taking place. Not fun but has to be done.. Lots of sleep, confusion and blank staring going on as I sink into the tank again.. It looks like we will be pretty much housebound for a while with Tweeks being tied up to the hitching post until we get thru this part of the ongoing health saga.. THANK GOD FOR THE UNWAVERING LOVE THAT TIP HAS FOR ME!

As always, ANY thoughts - prayers and concerns are greatly appreciated!!! Also, I would GREATLY appreciate any ride/event stories - WITH PICS - that our family here provides about the upcoming events that we will be missing!! Video's, if possible, of the dance contests coming up at the NY Rally will be especially appreciated!! I will still get on here to respond when possible BUT - please remember - that just cause I am to tired to respond does not mean I am not watching and enjoying!! :big-grin-emoticon:

Be careful out there ya bunch of lop eared varmints and dont forget to stop and smell the roses along what ever CTFW trail you find yourselves on!! :thumbsup:

 

Puc

 

I didn't realize you were feeling that rought 'Puc! I'm gonna have to come up with my friends Ben and Jerry and you just HAVE to try their icecream!

Link to comment
Share on other sites

I didn't realize you were feeling that rought 'Puc! I'm gonna have to come up with my friends Ben and Jerry and you just HAVE to try their icecream!
:fingers-crossed-emo:big-grin-emoticon:

 

I'll keep a light on for ya Cha and some fresh batteries in the camera :photographing:!! :thumbsup:

 

 

 

 

 

THANK YOU ALL FOR THE THOUGHTS, PRAYERS AND CONCERNS!! This family of ours is second to none!! Cant WAIT to get thru this stuff and get back to feeling normal!

Link to comment
Share on other sites

Hey Puc,

You were a hoot to see and visit with at Sturgis. I would not have guessed that anything was a miss. Just think of it as a very small price to pay for the rest of your life. You will be full of vim-vigor-and vitality before you can shake a stick. Just like when you broke down in Texas last year, you and Tip took a short break and before long you were on your way. Keep your heads, up rest easy, and get better. Prayers with you and Tippy- Isaiah 41:10 be strong my friend.

Bill and Lucretia

Link to comment
Share on other sites

Gracious Heavenly Father, You are in control of all things. I praise you for who You are in Your majestic glory above all things. Lord God, You have given us access to Your very throne room by the sacrifice of Your only Son. Father, I bow before You in reverence to Your holiness, but I also stand boldly before You, because Your Spirit is within me. Lord, You say in Your Word for those who believe to pray for one another and to ask without wavering according to Your will and it will be done. In obedience to Your Word I lift up my brother Scott to You. Father I pray that You would do a mighty work in His life for Your glory. Touch Him Lord, not only physically, but mentally and spiritually. Just say the Word and it will be done. Strengthen him Lord, encourage him Lord and constantly remind him of Your presence in his life. Glorify Yourself in this Father. I pray for your tender mercy upon my brother Scott and I pray that You would use his life as a testimony of Your goodness. Righteous Father, I pray this according to Your will and in the name of Your Son Jesus Christ. Amen!

 

Puc; Gambate Kudasai (Japaness for Keep Your Chin Up).

 

Your brother in Christ,

 

Chaplain Dusty:bagpipes-emoticon:

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...