CTmedicalFW, the next step...

[cowpuc]

After having a functional life of about 5% of that of a normal person over last winter (literally sleeping 18/20 hrs and still being tired), we were thanking God that this wreck of a body of mine responded like it did to Prednizone at an Emergency Room visit back in April. That response led my family doctor to hook me up with an Endocronologist (she is running out of specialist to send me to I think). They also found blood in my urine at the same ER visit which led me to a Urologist.. The results of the Urologist exams revealed that I do have Prostate Cancer, that proved to be low on what is known as a "Gleason" scale and totally unrelated to what ever was sucking the life out of me (literally felt like I had a hole in the bottom of my feet and every time I tried to stand up I could feel the life draining from my body - STRANGE!!!).. We decided to hold off on any advanced Prostate surgeries and continue pursuing what is/was causing my symptoms.

Because I did respond to Pred at the ER, my family Doctor started me on a low dose (5mg) of Pred back in April and that seemed to really help. It took some time to get into see an Endo Dr.. After listening to what was going on and examining my records, the Endo Dr. said it appears that I do have Adrenaline Deficincy as a result of something going wrong with my Pituatary/Adrenaline system.. At that time, test showed that the only Adrenaline present in my system was (and is) a very small amount that the low dosage of Pred is providing.

The unfortunate thing to all of this is that he (the Endo Dr.) can do nothing in further diagnoses or treatments until I am weaned off the Prednisone - a 4 to 6 week process that would lead me right back into that nasty world of living at 5% BUT - and its a HUGE BUT,, this time it would be for a purpose!!

I was SO glad to have had even a small amount of an ability to function this 2015 summer (been feeling at about 60% - ironically the Endo Dr. said that is exactly what he would expect as the Pred is only providing a fraction of what I need and only one type of adrenaline). By the grace of God and because of the Prednizone I was able to walk my youngest daughter down the isle and attend Freebirds MD, Orlin's MD, The Mackinaw Car Show, Muskegon's Bike Time and even hold a couple of my very own "Greet - Meet and Eat Meats". Not our usual 2 month summer of CTFW across our gorgeous country but far better (plenty of action to write about this coming winter) than what I thought my summer was going to be like - THANK GOD!!

When the Dr. announced that he was going to begin the process of cutting off my Pred a couple weeks ago I begged for mercy, explained how bad we wanted to attend the Sturgis Rally before heading back into the abyss.. The Doctor agreed to it as long as I agreed to start the process as soon as returning home from Sturgis..

Tweeks, Tip and I did get to attend the 75th Sturgis Rally - all went really well and we had a LOT of refreshing fun.. A deal is a deal however and I am now into my 4th day of cutting back my Pred as agreed upon. I can feel the change taking place and Tippy announced to me today that she can see the changes taking place. Not fun but has to be done.. Lots of sleep, confusion and blank staring going on as I sink into the tank again.. It looks like we will be pretty much housebound for a while with Tweeks being tied up to the hitching post until we get thru this part of the ongoing health saga.. THANK GOD FOR THE UNWAVERING LOVE THAT TIP HAS FOR ME!

As always, ANY thoughts - prayers and concerns are greatly appreciated!!! Also, I would GREATLY appreciate any ride/event stories - WITH PICS - that our family here provides about the upcoming events that we will be missing!! Video's, if possible, of the dance contests coming up at the NY Rally will be especially appreciated!! I will still get on here to respond when possible BUT - please remember - that just cause I am to tired to respond does not mean I am not watching and enjoying!!

Be careful out there ya bunch of lop eared varmints and dont forget to stop and smell the roses along what ever CTFW trail you find yourselves on!!

 

Puc

[dogman]

Scott, you are in my prayers. I wish you all the best with the skill set of the Doctor that he is able to find a solution to bring your adrenaline back up to normal. Nice that you know what is happening as I'm sure it must have been scarey the unknown as to why you lost all strength and drive.

[cecdoo]

Hey Puc, hang in there, hopefully they get you straightened out soon and you can get back out in the wind!

Take care, Craig

[Flyinfool]

Sounds like you at least have a plan. A plan is better than nothing.

 

It is amazing how such a tiny bit of some drug can have such a profound effect on a body. If you are close to 90,000,000mg and you add 5mg of a drug and look what that tiny fraction of a percent did for you. Just amazing.

 

Puc you keep your spirits up and that will help to keep the bad things down. Besides your buddies in MI are counting on you keep typing enough to keep me busy reading about your adventures all winter and out of the back shed.

 

Prayers still comin your way buddy.

[StarFan]

Puc my Man.

 

I was just heartbroken when I read this. But like Jeff said " At least you have a plan".

My thoughts will be with you at the WNY Rally and I will make sure to get some videos and pictures and send you.

You and Tippy are in mine and Greta´s prayers every night.

Rest assure you will get through this with the help of the Lord and your faith.

 

Be safe my friend,

 

Jonas / StarFan

[Yammer Dan]

I got plenty of time for prayer since I'm still doing a lot of sitting. Prayers UP!!!

[Guest divey]

Puc and Tippy, with this group pulling for you and in your corner, any thing's possible. Patience is a virtue and listen to the Doc. Doug

[billmac]

prayers always. fool is right their is a plan, maybe he will be nice and hold the white stuff until your back to yourself. If your feeling up to it Pam and I will come over and get you and tip a hot dog at your fav spot.

[T.J.]

Will be praying for you Puc and the whole family. Nahum 1:7

[Rmar]

Puc and Tippy

Prayers for you both. Keep the faith God is on your side.

 

Ricky

[DragonRider]

Sorry to hear about your medical woes, we all have them some worse than others, yours is nothing to shrug off, we will keep you in our prayers and will be thinking about you while at Vogel, and I am sure there will be some Puc stories to share by all. We will miss you but understand whats going on, take it easy, listen to the Doc's and get better. We are here for you always.

[videoarizona]

Scott,

 

I'm glad there is a plan in the works and you are ready for whatever may come. Sounds like your primary care doc and the new doc have you in their sights!

We think about youse guys all the time...and as always: Prayers Up!

 

P.S. Glad you had a great time at Sturgis and the trip to and fro. Was getting concerned since we hadn't heard from you during the trip...like your normal pics and tell!

Anything we can do...just ask.

[XV1100SE]

One way or another Scott, you are making progress. Sorry you won't be feeling well for a while but if it gives the Doc a chance to figure out what your problem is, then it will be worth it in the long run.

[slowrollwv]

Prayers up Scott.

[rbig1]

scott at least you made it to all the places you did. ive made it to two events and had to trailer bike to one of them. the third event was in a cage the whole time. haven't found anyone to put up with me yet. lol hope to see both of you next year. Im almost healed up now as long as I don't do something stupid. praying for quick and easy fix.

[dueyk1111]

thoughts n prayers sent your way! hopefully the doc can git ya straightened around right real soooooon!!!!!

[bikerjohn]

your in our prayers Brother

[MikeWa]

Holy Cow Puck.

I sure hope everything goes well for you and you get this sorted out. All this not knowing and diagnosis can be a royal pain in the behind. In the mean time you have our prayers and best wishes.

 

Mike

[Dale124]

Hang in there , Puc. This WILL be behind you, hopefully sooner than later. It's just the riding it out that is the sucky part.

Next season, you will be a new man, and putting on many miles on old Tweeks, with Tippy riding shotgun.

Dale

[frodotoo]

Sending prayers your way, with a side order of hope and a dash of best wishes to you and Tippy. Keep the faith Scott it will work out for you!

[bluestar99]

puc and toppy. it was real nice to see you at the channel yesterday and hearing about your sturges venture. i hope that the drs get this sorted out so all is well with you soon. as i said if you are feeling up to another meet and greet eat meat there is one 8 18 on whitehall road in muskegon and i would be happy to drive you. or anything i can do to help you out just let us know. you are in are thoughts . prayers up to you too. ron and vicki

[Marcarl]

Hey Puc and Tippy,, hang in there, the Creator has you in His sights, and we have you covered with prayer. Can't let you go on like this without a fight. Be patient and learn what He is about to teach you in the process. You know it's all about you and Him right? we are just pawns in the works, but also made in His image so that makes us important as well.

[MJ44]

Prayers for you!

[OrlinEngh]

Puc you are in our thoughts and prayers, Hope they find out what needs to be fixed and have you on the mend soon.

Orlin and Sharon

[mirider]

Puc and Tippy - Our thoughts and prayers are with you in this trying time. Our fervent hope is for a quick come-back from your ailments and the ability to saddle up ole Tweeks again soon. Hang in there buddy !